After Courtney's last surgery in May her health as you may know from reading has not been great. Just to give you a recap... the SDR (Selective Dorsal Rhizotomy) was supposed to help her with leg pain and muscle spasms. After her surgery she has been in even more pain and spasming like crazy. The surgery did not help her.
We have been monitoring her digression for a few months and we all have come to a conclusion that she needs a total health overhaul. We are admitting her into the hospital again for a long term stay in hopes that we can improve her quality of life. I want my happy little girl back so bad. Our intent in doing this is to put some weight on her bones with constant calorie intake and also do some botox injections where she is having the most pain with muscle tightness.
Having Courtney get worse has been awful to see. Your baby has a surgery that is supposed to do one thing and when she comes out of the hospital you all of the sudden have this fussy, uncomfortable and sad child. It has not been easy to see. I know the smiley angel is in there somewhere.
The doctors did say that since she is getting older and her scoliosis is getting worse that she over all will also just keep getting worse. It is so scary to come to terms with the fact that after almost 15 years of taking care of your little child they may have to go into a home or worse .... maybe not even have a ton of time left period. It is something that I constantly try to defy on a daily basis. But with every day of painful screaming it becomes more and more of a reality. I am a believer that when we pass we go to live with our Father in Heaven. I just would like quite a bit more time before he gets her back.
Everything else besides Courtney's health is good but very hectic. Anthony and I found out that we are expecting!! I am 6 weeks along and our due date is November 8th. The crappy thing is that Anthony will be deployed when the baby is born. With the girls not being his biological daughters he hasn't gotten to experience birth or anything like that. Unfortunately he will have to miss this one too. Our little family has progressed and became so close it's amazing. I feel so blessed to finally be having our family come full circle.
I have still been doing work for our business refinishing cabinets and furniture and it has been very busy!! Which of course is a good thing. I am just trying to find a good balance since every day at 3 o'clock I feel like I need a nap! But I guess that comes with the hormones and cravings ;).
I know this is a short message but I thought it would be nice for you all to have a little update.
Thanks for reading!
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